Posts with the label pulmonary fibrosis
Showing posts with label pulmonary fibrosis. Show all posts
Showing posts with label pulmonary fibrosis. Show all posts
Tuesday, March 14, 2017
A Modern-Day Miracle
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Thursday, February 2, 2017
Do You Want a Miracle or a Mess?
Ask and it shall be given you; seek, and ye shall find; knock, and it shall be opened unto you: For every one that asketh receiveth; and he that seeketh findeth; and to him that knocketh it shall be opened. - Matthew 7:7-8 KJV
We received terrifying news in March 2012. Steve couldn't breathe well. After a lung biopsy, the doctor looked us square in the eyes without any compassion and bluntly said "You've got two to five years". Usually, my response would have been something ridiculous like "Two to five years to what? Pay off my car? Make a million dollars? Retire?". But I knew crazy questions were not going to hide the evidence Steve's biopsy revealed; the diagnosis of a deadly form of lung disease, pulmonary fibrosis.
According to the study “Clinical Course and Prediction of Survival in Idiopathic Pulmonary Fibrosis,” median survival of patients who suffer from pulmonary fibrosis is 2.5 years, but some patients live much longer than that. The most common cause of death among patients is respiratory failure.
God blessed me with some tenacity for a reason! Battling a birth defect for 48 years, me and adversity are tight. Close companions. I have to admit hearing the prognosis I was shaken. Remember my words in October about Milisende? I can never promise an "unstirred" Tammy but I always promise to seek to discover Christ, my rock and salvation. The One who stills my fears during my fiercest storms...my Fear Whisperer. I began to ask, seek and knock ferociously concerning Steve's disease once I relocated my Anchor and He steadied my boat upright.
The past five years have been a tremendous journey with many ups and then downs and then ups again. Happiness one day and a nauseating sickness in the depths of my soul the next day. I won't even attempt to detail the entire process but I MUST share with you what happened yesterday which I believe started mid-December 2015.
I'm a member of a facebook group whose members have Antisynthetase Syndrome (which caused his pf) like Steve. I befriended one of the admins, really nice guy who was very willing to discuss Steve's medicines and treatment with me. He shared his journey giving me proven tips and advice. His suggestion that rang a bell with me was to obtain "brand" prescriptions for Steve instead of generic. I had previous experience with taking a brand drug (hormone) that worked for me but the generic did not. In fact, this happened to me twice and currently the medicine I use has to be from a certain manufacturer. The supposedly same medicine in the same strength does not have the same effect. I got Steve the brand medicine!
Fast forward to September 2016. Steve had been taking the brand medicine for eight months. His oxygen saturation tests at his doctor visit in September showed improvement. The improvement was so vast, the doctor asked if he still wanted the oxygen. Steve opted for it because he felt breathless.
Steve's insurance changed in September 2016. I called the oxygen company to notify them of the change. They were unconcerned until January 2017 when our balance grew to over $500 due to the insurance change. Insurance requires a 6-minute walk test without oxygen and with oxygen to approve the charges. Remember the improvement in Steve's oxygen saturation in September? Yesterday, GOD COMPLETELY OVERWHELMED STEVE AND ME!!!
Steve's oxygen saturation during a 6-minute walk did not go below 88%! 87% is the magic number to get oxygen approved. After the test, the doctor came out and spoke with us. "Good News!" he said. Your test today shows YOU DO NOT NEED OXYGEN! Are you willing to call Apria and ask them to come get their bottles? Steve apprehensively said yes. I said aloud "Praise Jesus!".
We are both still a bit rattled but so very thankful to a God who loves and cares for us. Steve is still disabled. He still has a severe lung disease but my oh my, what progress! What a miracle that I give our Heavenly Father all the glory for. Thank you so much for all your prayers and please don't stop interceding on Steve's behalf. Our God is might to save in every way! Now, we have a new challenge that I know God will provide. The new insurance won't pay for the brand medicine. The cost? $1400 a month. That's like nothing for Jesus! Please join us in praying for a quick solution as he's been taking the generic now for a month. These chemo meds take at least eight months to begin working or not working.
We want miracles! Would the walls of Jericho fell if the people had marched around 6 times or 8 times when God said 7? Would Gideon have been defeated if he had not used the men God made lap like a dog? Did David need more than one stone to kill Goliath? I could go on and on with the victories God provides his children. If we want miracles and not a mess, ask and receive, seek and find, knock and walk through God's open glorious door!
Seeking miracles,
Tammy
The Happy Handicap
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